2018-2019 HIV/AIDS Community Information Outreach Projects
The National Library of Medicine (NLM) funded 8 HIV/AIDS Community Information Outreach Projects in September 2018 in the 25th round of the program. NLM has continued its HIV/AIDS-related outreach efforts to community-based organizations, patient advocacy groups, faith-based organizations, departments of health, and libraries. This program provides support to design local programs for improving information access for HIV/AIDS patients and the affected community as well as their caregivers.
“Project HELP (HIV Education Learning and PrEP)”
With focus on individuals in the Fifth Ward, an underserved Houston neighborhood with a high HIV prevalence rate, the goal of Project HELP is to use community stakeholders, trained as community health workers (CHWs), to disseminate HIV/AIDS and pre-exposure prophylaxis (PrEP) resources to improve and increase access to accurate information. Project HELP will disseminate National Library of Medicine (NLM) HIV/AIDS information resources. In addition, in collaboration with the University of Houston Honors College Community Health Worker Initiative (CHWI), Project HELP will include information about the AIDS Foundation Houston (AFH) PrEP website training trainings for local health care providers and community members on how to become CHWs. AFH will educate the CHWs on how to use the NLM HIV/AIDS and PrEP resources, implement community outreach techniques, and develop HIV and PrEP fact sheets and resource cards. The training information provided will engage and encourage individuals to access NLM HIV/AIDS resources and the AFH PrEP website as the “go to” resources for accurate information. The AFH and CHWI training will prepare CHWs to also implement outreach activities. To support the effort of the CHWs, AFH will launch a digital campaign to heighten awareness of the NLM HIV/AIDS resources among the general public.
“Pop the Question (PTQ) (phase 4)”
Pop the Question (PTQ) IV is a national social media campaign using Facebook and Instagram to increase awareness about HIV prevention, specifically pre-exposure prophylaxis (PrEP) and post-exposure prophylaxis (PEP). By connecting Black women to the National Library of Medicine (NLM) HIV/AIDS resources, educating them about PEP and PrEP, offering them support, and teaching them how to transfer this knowledge to their own self-care, Black Girl Health (BGH) can educate African American women to make informed decisions regarding their health. The nationwide social media campaign targets African American women 18 to 55 years of age through engagement with a national social media influencer. BGH will create a culturally relatable media campaign that will disseminate PEP and PrEP information via engaging videos, support the message with infographics that further relate information on PEP/PrEP medications, and direct women to the BGH website through a ‘call to action’ assessment quiz that encourages interactive engagement and connects visitors to NLM HIV/AIDS and PEP/PrEP resources, including AIDSinfo and PrEP Navigator. The PTQ campaign benefits public health by engaging African-American women with high-quality, relatable information that encourages them to take preventative measures to control their health. The campaign also gives community organizations, navigators, and advocates culturally relevant resources to use when interfacing with clients.
“PrEParate para tu futuro / PrEP for your Future“
The goal of the Comunidades Unidas’ PrEParate para tu futuro / PrEP for Your Future project is to increase the accessibility of HIV/AIDS-related health information and resources among Latinx (Latino/Latina) and LGBTQ+ individuals, specifically men who have sex with men (MSM), residing in Salt Lake County, Utah. Comunidades Unidas aims to fight stigma and empower these populations to better prevent, manage, and treat HIV/AIDS via increased connection to National Library of Medicine (NLM) online HIV/AIDS resources and information and access to local pre-exposure prophylaxis (PrEP) services. Comunidades Unidas, in collaboration with the Spencer S. Eccles Health Sciences Library, will train staff, promotoras (community health workers), and youth leaders on HIV/AIDS prevention, NLM online resources, and local HIV prevention services such as PrEP. Once trained, these individuals will act as ambassadors and peer mentors of the project and disseminate information and provide navigation assistance for resources related to PrEP and other HIV/AIDS prevention services.
“Frontline TEACH Online: Empowering HIV Professionals to Take Control of Their Education”
The Frontline TEACH Online project goal is to close the gaps in competence among professionals in HIV and allied fields by providing high-quality, accessible educational content geared towards health care and social services professionals working with people living with or at risk of HIV/AIDS. Frontline TEACH Online also aims to address the gaps in provider competency that prevent people living with HIV/AIDS (PLWHA) from engaging in care by targeting professionals who are key gatekeepers in stemming the tide of HIV infection. Philadelphia FIGHT will develop eight webinars, which can be viewed sequentially or out-of-sequence, to create a time-test FIGHT treatment education program for health care providers and prescribers, nurses, social workers and case managers, community health workers, frontline staff, and others working with PLWHA. The program content will address provider competency through high-quality HIV educational information developed from NLM resources.
“Amigos y Amantes” (“Friends and Lovers”)
The goal of this project is to continue and expand the work of a currently funded National Library of Medicine (NLM) HIV/AIDS Community Information Outreach Program (ACIOP) initiative to create and market HIV educational online and print resources that feature information and links to NLM HIV/AIDS resources, using original, serialized stories on Instagram. To help reduce stigma, the Prevention Collaborative will create two new stories featuring relatable characters based on actual community members, who will help develop the structure and content of the stories. All stories will reference and link to NLM resources to engage the target communities in three key topics of HIV education: advocacy of regular HIV testing and the use of NLM resources to find testing locations; endorsement of PrEP/PEP for HIV prevention; and promotion of the Undetectable = Untransmittable (U=U) campaign. The intended nationwide audience for the proposed project is men who have sex with men (MSM), transgender individuals of color who are living with or at risk for HIV infection, and anyone affected by HIV (e.g., family members or caregivers of people living with HIV). Trained peer outreach specialists will use the Instagram platform and content to engage with followers and provide additional harm reduction counseling and links to resources. All work will be conducted by the partner organizations in collaboration with a multidisciplinary team with expertise in research, content development, health education, HIV/AIDS, and outreach to MSM and transgender communities.
“HIVEOnline.Org: Improving Access to Comprehensive, HIV-Informed Sexual and Reproductive Health Information”
HIVEonline.org is a virtual hub for disseminating best practices, has become a comprehensive online resource for HIV-informed sexual and reproductive health. HIVE aims to improve online access to, and knowledge about, HIV-informed sexual and reproductive health information for people affected by HIV. HIVE will expand its online science-based content on pre-exposure prophylaxis, post-exposure prophylaxis, and treatment as prevention/undetectable equals untransmittable, use preferred language, and improve access to the National Library of Medicine’s online HIV/AIDS information. HIVE aims to increase HIVonline.org retrievability, functionality, and accessibility to help people affected by HIV have safe pregnancies, reproductive autonomy, and access to state-of-the-art health care.
The pleasePrEPme website expands access to pre-exposure prophylaxis (PrEP) and post-exposure prophylaxis (PEP) through an online searchable, location responsive national PrEP provider directory, in collaboration with PrEPLocator.org; local HIV-prevention resources in English and Spanish for patients and providers in all 50 states; and experienced navigators to provide assistance via online chat, text, or phone. The goal of the project is to improve access to PrEP services by meeting the need for no-cost, fully accessible PrEP navigation training for frontline staff, case managers, PrEP navigators, administrators, and other non-clinician staff at clinics and departments of public health. The training content will include video and print media and NLM resources such as AIDSinfo, MedlinePlus, AIDSource (particularly the PrEP Navigation Resources pages of the website), and ClinicalTrials.gov. The project will be promoted via social media and email outreach, utilizing listservs such as the California PrEP Navigators Google Group, and social media channels such as pleasePrEPme’s Facebook, Instagram, and Twitter pages. The benefits of an online PrEP navigation training program include staff’s ability to complete modules from their office or home, without the time or expense of travel.
“HIV/AIDS Information at the Point-of-Care”
The HIV/AIDS Information at the Point-of-Care project is a collaborative effort among UMass Memorial Health Care (UMMHC); AIDS Project Worcester, Inc.; the Worcester Public Library; and the Lamar Soutter Library at the University of Massachusetts Medical School to increase use of National Library of Medicine (NLM) resources in Worcester, Massachusetts. The project will increase access to NLM HIV/AIDS information resources, PrEP navigator resources, and other HIV/AIDS-related information resources by developing a web-based training module and health education information, and training outreach workers to support the health information needs of clients visiting the UMMHC HIV/AIDS clinics.