2018-2019 HIV/AIDS Community Information Outreach Projects
The National Library of Medicine (NLM) funded 8 HIV/AIDS Community Information Outreach Projects in September 2018 in the 25th round of the program. NLM has continued its HIV/AIDS-related outreach efforts to community-based organizations, patient advocacy groups, faith-based organizations, departments of health, and libraries. This program provides support to design local programs for improving information access for HIV/AIDS patients and the affected community as well as their caregivers.
“Project HELP (HIV Education Learning and PrEP)”
With focus on individuals in the Fifth Ward, an underserved Houston neighborhood with a high HIV prevalence rate, the goal of Project HELP is to utilize community stakeholders, trained as Community Health Workers (CHWs), to disseminate HIV/AIDS and Pre-exposure Prophylaxis (PrEP) resources to improve and increase access to accurate information. Project HELP will disseminate the National Library of Medicine (NLM) HIV/AIDS Information Resources. Additionally, in collaboration with the University of Houston Honors College Community Health Worker Program (CHWP), Project HELP will include information about the AIDS Foundation Houston (AFH) PrEP Web site to train local health care providers and community members to become CHWs. AFH will educate the CHWs on how to use the NLM HIV/AIDS and PrEP resources, implement community outreach techniques, and develop HIV and PrEP fact sheets and resource cards. The training information provided will engage and encourage individuals to access NLM HIV/AIDS resources and the AFH PrEP Web site as the “go to” resource for accurate information. The AFH and the CHWP training will prepare CHWs to also implement outreach activities. To support the effort of the CHWs, AFH will launch a digital campaign to heighten the general population’s awareness of the NLM HIV/AIDS resources.
“Pop the Question (PTQ) (phase 4)”
PTQ IV is a national social media campaign utilizing Facebook and Instagram to increase awareness about HIV prevention, specifically Pre-exposure Prophylaxis (PrEP) and Post-Exposure Prophylaxis (PEP). By connecting minority women to NLM resources, offering awareness and support about PEP, educating women about PrEP, and teaching them how to incorporate these into their self-care practices, BGH can educate African American women to make informed decisions regarding their health. The nationwide social media campaign targets African American women aged 18-55 through engagement with a national social media influencer. BGH will create a culturally relatable media campaign that will disseminate PEP and PrEP information via engaging videos, support the message with infographics that further relate information on PEP/PrEP medications, and direct women to Black Girl Health’s Web site through a ‘call to action’ assessment quiz that encourages interactive engagement and connects visitors to NLM and PEP/PrEP resources, including AIDSinfo and PrEP Navigator. The PTQ campaign benefits public health by encouraging African-American women to take control of their health with preventative measures through access to high-quality, engaging, and relatable information. This campaign also gives community organizations, navigators, and advocates culturally relevant resources to use when interfacing with clients.
“PrEParate para tu futuro / PrEP for your Future“
The goal of Comunidades Unidas’ PrEParate para tu futuro / PrEP for your Future project is to increase the accessibility of HIV/AIDS-related health information and resources among Latinx (Latino/Latina) and LGBTQ+ individuals, specifically men who have sex with men (MSM) residing in Salt Lake County, Utah. Comunidades Unidas aims to fight stigma and empower these populations to better prevent, manage, and treat HIV/AIDS via increased connection to online National Library of Medicine (NLM) resources and information and access to local PrEP services. Comunidades Unidas in collaboration with the Spencer Eccles Health Science Library will train staff, Promotoras (Community Health Workers), and youth leaders on HIV/AIDS prevention, NLM online resources, and local HIV prevention services such as PrEP. Then team members will act as ambassadors and peer mentors of the project and disseminate information and provide navigation assistance for resources related to PrEP and other HIV/AIDS prevention services.
“Frontline TEACH Online: Empowering HIV Professionals to Take Control of Their Education”
The Frontline TEACH Online project goal is to close the gaps in competence among professionals in the HIV and allied fields by providing high-quality, accessible educational content geared towards health care and social services professionals working with people living with HIV/AIDS (PLWHA) and those at risk. Frontline TEACH Online also aims to address the gaps in provider competency that prevent PLWHA from engaging in care by targeting professionals who are key gatekeepers in stemming the tide of HIV infection. Philadelphia FIGHT will develop eight webinars, that can be viewed continuously or out-of-sequence, to create a time-test FIGHT treatment education program for health care providers and prescribers, nurses, social workers and case managers, community health workers, frontline staff, and others working with PLWHA. The program content will address provider competency through high-quality HIV educational information derived from NLM resources.
“Amigos y Amantes” (“Friends and Lovers”)
The goal of the project is to continue and expand the work of a currently funded NLM ACIOP initiative to create and market HIV educational online and print resources featuring information and links to the National Library of Medicine HIV/AIDS resources, using original, serialized stories on Instagram. The Prevention Collaborative will create two new stories to assist in reducing stigma through use of relatable characters based on the lives of actual community members, who will help inform story structure and content. All stories will reference and link to NLM resources to engage the target communities in three key topics of HIV education: advocacy of regular HIV testing and the use of NLM resources to find testing locations; endorsement of PrEP/PEP for HIV prevention; and promotion of the Undetectable = Untransmittable (U=U) campaign. The intended audience for the proposed project is men who have sex with men (MSM), transgender individuals of color nationwide who are living with or at risk for HIV infection, and those affected by HIV (e.g., family members or caregivers of people living with HIV). Trained peer outreach specialists will use the platform and content to engage with followers and provide additional harm reduction counseling and links to resources. All work will be conducted by the partner organizations in collaboration with a multidisciplinary team with expertise in research, content development, health education, HIV/AIDS, and outreach to MSM and transgender communities.
“HIVEOnline.Org: Improving Access to Comprehensive, HIV-Informed Sexual and Reproductive Health Information”
HIVEonline.org is a virtual hub for disseminating best practices, having become the comprehensive online resource for HIV-informed sexual and reproductive health. HIVE aims to improve online access to, and knowledge about, HIV-informed sexual and reproductive health information for people affected by HIV. HIVE will expand its online content with the latest science (Pre-exposure Prophylaxis, Post-exposure Prophylaxis, and Treatment as Prevention/Undetectable equals Untransmittable), use preferred language, and improve access to the to the National Library of Medicine’s online information. HIVE aims to increase HIVonline.org retrievability, functionality, and accessibility to help people affected by HIV have safe pregnancies, reproductive autonomy, and access to state-of-the-art health care.
PleasePrEPMe expands access to Pre-exposure Prophylaxis (PrEP) and Post-exposure Prophylaxis (PEP) through a searchable, location responsive national PrEP provider directory, in collaboration with PrEPLocator.org; local HIV-prevention resources in English and Spanish for patients and providers in all 50 states; and online chat, text, and telephone with experience navigators. The goal of the project is to improve access to PrEP services by meeting the need for no-cost, fully accessible, PrEP navigation training for frontline staff, case managers, PrEP navigators, administrators, and other non-clinician staff at clinic and departments of public health. The training content will include video and print media and NLM resources such as AIDSinfo®, MedlinePlus®, AIDSource (particularly the PrEP Navigation Resources pages), and ClinicalTrials.gov. The project will be promoted via social media and email outreach, utilizing listservs such as the California PrEP Navigators Google Group, and social media channels such as PleasePrEPMe’s Facebook, Instagram, and Twitter pages. The benefits of an online training PrEP navigation training program include staff who are able to complete modules from their office or home, without the time or expense of travel.
“HIV/AIDS Information at the Point-of-Care”
The HIV/AIDS Information at the Point-of-Care project is a collaborative effort between UMass Memorial Health Care, AIDS Project Worcester, Worcester Public Library, and the Lamar Soutter Library at the University of Massachusetts Medical School to increase utilization of National Library of Medicine (NLM) resources in Worcester, Massachusetts. The project will increase access to NLM HIV/AIDS information resources, PrEP Navigator Resources, and other AIDS-related information resources by developing a Web-based training module and health education information, and train outreach workers to support the health information needs of clients visiting the UMMHS HIV/AIDS clinics.