The National Library of Medicine® (NLM) provides funding through the HIV/AIDS Community Information Outreach Program (ACIOP) for HIV/AIDS service organizations to design local programs for improving HIV/AIDS information access for patients and the affected community as well as their caregivers and the general public. Additional information about the ACIOP can be located at sis.nlm.nih.gov/outreach/aids_cio_projects.html.
2017 HIV/AIDS Community Information Outreach Projects
The National Library of Medicine (NLM) funded 8 HIV/AIDS Community Information Outreach Projects in September 2017 in the 24th round of the program. NLM has continued its HIV/AIDS-related outreach efforts to community-based organizations, patient advocacy groups, faith-based organizations, departments of health, and libraries. This program provides support to design local programs for improving information access for HIV/AIDS patients and the affected community as well as their caregivers.
“Project HELP (HIV Education Learning and PrEP)”
The goal of Project HELP is to utilize community stakeholders, trained as CHWs to disseminate the information to the community to improve and increase community members’ access to accurate HIV/AID and PrEP information. The project will focus on individuals in the Fifth Ward, an underserved Houston neighborhood with a high HIV prevalence rate. Project HELP (HIV Education Learning and PrEP) will disseminate information to improve and increase the access of the National Library of Medicine’s HIV/AIDS and PrEP resources. In this collaboration, AIDS Foundation Houston’s Project HELP and the University of Houston’s Honors College – Community Health Worker Program (CHWP) will train local stakeholders (healthcare providers and community members) to become Community Health Workers (CHWs). AIDS Foundation Houston (AFH) will educate the CHWs on how to use the NLM HIV/AIDS and PrEP resources and community outreach techniques, and how to develop HIV and PrEP fact sheets and thumb cards. The training information provided will engage and encourage individuals to access NLM HIV/AIDS resources and AFH’s PrEP website as the “go to” resource for accurate information. The AFH and the CHWP training will prepare CHWs to also implement outreach activities. The CHWs will utilize their knowledge, skills, educational materials, digital resources, and social media to raise awareness about the NLM HIV/AIDS resources and AFH’s PrEP website, becoming the “information hub” for HIV/AIDS information. To support the effort of the CHWs AFH will launch a digital campaign to heighten the general population’s awareness of the NLM HIV/AIDS resources.
“One-Two Punch: Knocking Out HIV and Syphilis Co-Infection”
The American Sexual Health Association (ASHA) and its partners will motivate patients, families, and communities to act in lowering the HIV and syphilis co-infection rate. Between 2013 and 2014, rates of syphilis infection skyrocketed. Further, in some communities, nearly 50% of men who tested positive for syphilis were diagnosed also with HIV. Although HIV infection rates remain steady, this co-infection occurrence is of concern as syphilis can increase the viral load of persons living with HIV and severely increase the risk of HIV transmission. The project will increase awareness of National Library of Medicine (NLM) information on HIV and syphilis co-infection. The project will develop and disseminate new materials to local and national organizations that promote public HIV and syphilis co-infection knowledge and testing, and promote screening for HIV and syphilis among patients and families. Newly developed materials include eight posters/handouts for social media or print use; two moving images (GIFs) or memes; and one longer, informative video. Materials and training will target audiences most impacted by HIV and syphilis in ASHA’s home state of North Carolina, including those who are gay, bisexual, men who have sex with men (across all races), Black/ African-American men and women, and communities in the Southern U.S.
“Pop the Question III (phase 3)”
“Pop the Question III (phase 3)”, is a national social media and video campaign using Facebook and Instagram to increase awareness about HIV prevention and treatment among minority women. The goal of this outreach project is to improve the lives of minority women by increasing knowledge and awareness of NLM HIV/AIDS resources and offering tools and support to help women talk with their sexual partners about HIV/AIDS. “Pop the Question” will also educate women about PrEP. The social media campaign targets 12 major U.S. cities identified with high rates of HIV infection by the Center of Disease Control: Baltimore, Atlanta, Chicago, Dallas, Houston, Miami, Los Angeles, New York City, Philadelphia, Washington D.C., Houston and Detroit. BGH will create culturally relatable social media video commercials that disseminate HIV/AIDS and PrEP information that includes, risky behaviors, prevention, testing, treatments, side effects, nutrition, social and emotional factors. The video will direct women to Black Girl Health’s website that links to NLM resources and local resources about prevention and treatment. This project will include a website redesign that features the HIV/AIDS awareness campaign and eases the discovery of high-quality online and local HIV/AIDS resources. The “Pop the Question” campaign benefits public health by encouraging African-American women, a high-risk population, to take control of their health as it relates to HIV/AIDS through positive peer influence and access to high-quality information and services. This campaign also gives community organizations, navigators and advocates culturally relevant resources to use when engaging with clients.
“HIV Health Literacy Training Campaign“
Founded in 1982, Gay Men’s Health Crisis (GMHC) is the world’s first organization to provide prevention, education, and care services for people living with and affected by HIV. New Yorkers need accurate, culturally-appropriate and reliable information about HIV/AIDS transmission and prevention methods; however, many lack the resources to access, understand or apply this information. GMHC’s project will launch an HIV health literacy training campaign and produce web videos that build consumers’ skills accessing interpreting and applying HIV related information from the National Library of Medicine in their own lives. In addition, GMHC will produce a series of HIV fact sheets, to be distributed online and in print, that provide up to date, relevant, culturally-appropriate information on HIV/AIDS, PrEP and safer sex practices. The project will increase knowledge and skills and empower consumers to make healthy decisions.
“Connect Up, Fight AIDS!: Putting Tech, Info, and Resources Where Health Happens”
The Philadelphia FIGHT AIDS Library staff will provide librarians and public computing center staff located within the neighborhoods most impacted by the HIV epidemic with a comprehensive HIV health literacy toolbox that addresses the needs of both staff and patrons. Over the course of the project, the “Connect Up, Fight AIDS! Project” will create a Health Literacy Learning Lab to provide training on online and digital tools to a wide range of frontline staff and patrons. The Philadelphia FIGHT staff will design a 2-part curriculum geared toward librarians and digital literacy staff on up-to-date knowledge about HIV and PrEP and train on high quality NLM resources and other websites, videos, and mobile apps appropriate for library and lab users in need of confidential and stigma-free digital HIV and PrEP resources. Philadelphia FIGHT will create an eHealth Kiosk for patrons to get HIV, PrEP and other health literacy resources in a confidential manner and demonstrate to library and digital literacy staff how this eHealth Kiosk can be implemented at their own sites. The project will design Ready Reference Guides on HIV, PrEP, and other key health topics to share and distribute widely in libraries and computer labs. Philadelphia FIGHT staff will provide in-person expert workshops for patrons and lab users at various locations.
“Amigos y Amantes” (“Friends and Lovers”)
The goal of the project is to continue and expand the work of a currently funded NLM ACIOP initiative to create and market bilingual English/Spanish language HIV educational online and print resources featuring information and links to the National Library of Medicine HIV/AIDS resources. The project will create interactive online educational content about HIV/AIDS prevention and treatment for at-risk and HIV positive bilingual and monolingual Spanish speaking adults ages 18-65 with information from and links to National Library of Medicine (NLM) HIV/AIDS websites. The Prevention Collaborative will translate the current Spanish language educational fact sheets about HIV/AIDS prevention and treatment featuring characters and information from the online content into bilingual materials. The project will continue development of websites and social media campaign to disseminate these materials in the community and among health professionals.
“The Bringing HIV/AIDS Information to the Heart of the Commonwealth”
“The Bringing HIV/AIDS Information to the Heart of the Commonwealth” outreach program increases awareness and utilization of National Library of Medicine (NLM) resources among those impacted by HIV/AIDS in Worcester, Massachusetts. This includes those living with HIV/AIDS, their caregivers, and the staff and volunteers of the partner organizations: AIDS Project Worcester (APW) and Worcester Public Library (WPL). The project will include train-the-trainer sessions conducted by the University of Massachusetts Medical School, Lamar Soutter Library (UMMS) for the APW and WPL staff and volunteers who will then provide training sessions as part of their outreach efforts. APW in turn will train UMMS and WPL staff on PrEP and the PrEP Navigator resources available through the National Library of Medicine. The project will also include website updates and content refreshes for all sites to include new NLM HIV/AIDS and PrEP resources and acquire equipment that will facilitate outreach within the partner organizations and in the community.
“they2ze2.0 Mobile Application”
The“they2ze2.0 Mobile Application” projects builds on the previous 2016-2017 ACIOP project. The “they2ze” app is a user-centered mobile application (app) designed to connect 16-18 year old transgender-spectrum youth (TSY), young adults, and their medical providers to inclusive HIV/AIDS information, health services and peer support. Initially developed targeting the San Francisco Bay Area, the they2ze2.0 app has been highly successful in connecting TSY and their providers to National Library Medicine HIV/AIDS prevention information and best practices, while also providing current trans-inclusive resources that address the sexual, mental health and social needs that TSY face every day. The community has expressed need and desire for access to expanded resources geographically, while they continue to face health disparities in HIV and PrEP access and utilization. Despite their increased rates of HIV transmission, TSY are clinically excluded from most PrEP education services and HIV-centered research, leaving TSY with unique and critical needs for inclusive, customized PrEP access and education. The “they2ze2.0” app builds upon Internet Sexuality Information Services/YTHs’ seventeen years of successful HIV/AIDS education and outreach to minority youth and their providers.