Monthly Archives: May 2017

El Centro – Content Creation Part: 4 Content Development

In our previous blog post, we described the challenges of creating content that’s brief, educational, and entertaining. For our ACIOP project, community members asked for a variety of characters facing different situations, including some who are related, and agreed that the content could reference sexual situations but should not be explicit in showing them. They also wanted the option of choosing content that they felt was most relevant to them.

The creative team held several meetings to draft plot outlines, and decided on an approach we’ve come to refer to as a “circle of friends” story structure in which we have one main character who acts as a common thread among all the other characters. For these stories, that central link is Gabriel, a young man who’s questioning his sexuality. In this way, he reflects the experiences we’ve heard from many young men who have sex with both men and women but don’t consider themselves MSM or bisexual. We also hope his fluid sexuality will make him relatable to a wider audience. As main characters, the story also includes Gabriel’s cousin Angela, her mother Maria Elena, and his friend Mateo.

To keep content brief, we created five short episodes: the first four each focus on one of the four main characters, and a final episode wraps things up while also leaving open the opportunity for the story to continue in the future. The story moves sequentially through the 5 episodes, but each episode is also written in such a way that it can be watched alone and still achieve a learning objective.

Community groups convened to read the scripts aloud and provide feedback on the episodes, which are summarized below:

Episode 1: Mateo makes a new friend at the gym, Alejandro, and Mateo mentions that he’s heading to a nightclub later. That evening, Mateo chats with Isabel at the club, but she leaves with friends. Alejandro arrives, the two men drink more, and Alejandro goes to Mateo’s apartment with him. Mateo wakes up the next morning not sure what happened between them.

Community feedback: Some community members felt that Mateo was just using alcohol as an excuse to be with Alejandro and to claim that he didn’t remember what happened, rather than being honest about his sexuality, which was part of what made it realistic:  “It’s written perfectly and the issue at hand is clearly understood. It also has action in it and it’s modeled after real life situations.”

Episode 2: Angela and Mateo are in her living room talking about Mateo’s problems, and Angela encourages Mateo to be more honest about his sexuality. Mateo leaves, and Angela’s boyfriend Esteban arrives. Angela needs to study, but Esteban pressures her to have sex. Angela struggles but eventually gives in. After Esteban leaves, Angela wonders if he’s being unfaithful to her, and whether women can use the HIV prevention pill PrEP that her cousin Gabriel is taking.

Community feedback: Many community members said they had been in this situation themselves on several occasions: “It’s very relatable”; “I also noticed that she has no one to openly talk to about this situation to educate herself and feel comfortable. She feels alone and abused in a sense…”

Episode 3: Gabriel is on the phone with Angela, talking about Esteban. Gabriel is interested in having a long-term boyfriend, but also uses hookup apps to find casual partners. He’s on PrEP but doesn’t use condoms, and starts to wonder whether he might have an STI.  The next day he, Mateo and Angela are at Gabriel’s apartment and talk about going back to the clinic where Gabriel gets PrEP, but Gabriel is hesitant since he doesn’t want to admit he hasn’t been using condoms. Gabriel’s mother Maria Elena passes by and hears part of the conversation.

Community feedback: While many community members have medical providers they trust, Gabriel’s reluctance to visit the clinic was seen as very realistic: “[Going to the doctor means] suspense. A lot of people are nervous. A lot of fear.”; “[Doctor visits] are difficult.”; “[Doctor visits are] painful.”; “Even if you know your results are going to be negative there is always the fear of ‘what if I’m positive?’”

Episode 4:  Maria Elena is worried about what she’s overheard and is concerned the young adults might be at risk. Wanting to google more information about HIV and STIs, she grabs Gabriel’s iPad and finds a photo of him at the Gay Pride parade. She’s long heard rumors that he might be gay, but for her this confirms it. She has mixed emotions but most of she all loves her son, and her concern for his safety increases. Maria Elena continues reading information online, and decides to try finding a local clinic to help everyone get the resources they need.

Community feedback: Maria Elena facing her son’s sexuality and the issues he and his friends are dealing with was seen positively, as was her trying to learn more and find ways to help and understand without directly confronting the youth: “First thing [a Latina mom] would do is be in a state of shock, then cry, then educate ourselves…”; “…I would prefer her to have an open mind because if I’m going to love my kids… I am going to love them any and every way that they are. I will take care of them and always teach them. Take care of yourself, protect yourself and educate yourself. I would keep in mind what’s best for them.”

Episode 5: Maria Elena takes Gabriel, Angela and Mateo out to lunch. She’s chosen a restaurant that will ensure the group walks past a clinic on their way there. She stops in front of the clinic and feigns ignorance, asking Gabriel to explain what services they might provide. Maria Elena is encouraging about how nice it is that there are places young people can go for help. Maria Elena leaves lunch early, claiming she has errands to run but in fact giving the young people some private time to talk. They take the hint, and decide to visit the clinic together after lunch.

Community feedback: Overall they approved of Maria Elena’s approach: “I think it was excellent that Maria Elena made that decision because Angela seemed alone in this situation. When she was brought to the clinic, Angela felt happy about it and felt supported.”; “The most important thing is that [Maria Elena] sent them to speak to someone and gave them their privacy. Her approach was: ‘We’re here. Go find out what you need and I’ll be over there.’”

However, in the first draft of this episode, Maria Elena’s actions regarding the clinic were much more direct, almost as if she pulled a bait-and-switch by inviting the young adults to lunch but then trying to get them to go to the clinic instead, which was seen negatively as being tricky and deceptive. The scene was rewritten to show Maria Elena linking the young people to resources and showing her support in a more subtle, caring way, with a respect for their privacy, and with the young people then making the choice together to accept the recommendation.

Other minor edits to wording and character interaction were also suggested and incorporated into our final drafts. For example, the initial greeting between Angela and Maria Elena was rewritten to be more familiar and affectionate, to reflect how the community described the family closeness would normally be expressed.

With our stories finalized and our artwork in development, our next big step is to choose a name for the project. We’ve opened voting to our community members and colleagues, so feel free to give us your input and to share this link with others!

https://www.surveymonkey.com/r/ACIOP2017


All the El Centro blog entries were written by Christel Hyden.

Christel Hyden is a public health consultant with over 10 years of experience developing and evaluating health education programs and materials, with an emphasis on multimedia and technology based interventions. She also serves as Director of Research and Evaluation for the Harlem Health Promotion Center at Columbia University, and holds a faculty appointment in the Department of Family and Social Medicine at Albert Einstein College of Medicine. Dr. Hyden has an MS in applied social research and an EdD in health education.

 

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El Centro – Content Creation Part 3: Content Development

Multimedia storytelling can be a powerful tool for reaching communities in non-traditional ways, but also poses challenges we don’t face when creating a brochure or a poster. Holding community meetings to discuss and review content is a crucial step for resolving the many issues that can arise when trying to create materials that are both entertaining and informative.

In these types of projects, primary challenges include:

  • Keeping things realistic while also demonstrating or role modeling the desired behavior.
    • For example, in the HIV education project Heads or Tails, the community group agreed that in a casual sexual situation, a given character would probably not use a condom. We facilitated a discussion to decide whether we could include condom use in that scene anyway in order to normalize the behavior, and if so how could we make that choice seem realistic. The solution was to show the character’s internal monologue in which he debates whether to use a condom and decides he’s getting tired of worrying about his status and is going to try to do better starting with this moment. In this way, we’ve stayed true to the fact that it’s not something the character might normally do, but we’ve also demonstrated that new, healthy choices can be made.hott2
  • Incorporating health education information as naturally and seamlessly as possible.
    • Unlike more didactic materials that might simply list the details you want the audience member to learn, utilizing characters’ experiences and stories to convey information often requires a more subtle and thoughtful approach. For instance, for many viewers it wouldn’t make sense for a young adult to have an encyclopedic knowledge of HIV prevention information at the ready to share with their friends. We work with community members to identify realistic methods to incorporate that messaging within the story, often asking during the writing process, “How would a character know this?” so we can give context to the knowledge. This can include showing the character doing internet research; having the character flash back to a clinic visit when a clinician was educating them; or giving them a relevant backstory, e.g., their partner is a trained peer educator, or they recently started PrEP and want to tell a friend about it. For a community information outreach project about genomic testing, the community members chose to make the main character a nursing student who has a conversation with her father about what she learned in school. This helps establish her as both a reliable and realistic source of health information.genomics
  • Keeping it short and sweet.
    • User feedback on previous projects suggests that each animated segment shouldn’t last longer than 8 minutes, and ideally should be 5 minutes or less. For context: 8 minutes of scripted audio is roughly 1,500 words, or no more than 3 single spaced pages in a 12-point font. That’s not a lot of time or space to tell a compelling story and include some facts! We work with community members on multiple revisions to pare down our scripts, to break content down into shorter 3-5 minute “episodes” with specific learning objectives, and to develop user interfaces that make the extra content available to the user outside of the main story (e.g., a pop-up box in the margin with links to NLM websites).

 

In the first round of focus groups for our ACIOP project, the community members expressed an interest in having a variety of characters in the story since they felt a lot of existing HIV information was targeted only at the LGBT community. Along with continuing outreach that for YMSM, they suggested including a young woman who may be at risk of HIV due to her partner’s infidelity, and who also may not feel safe negotiating HIV prevention with her partner. The community also wanted an older character who’s perhaps not at risk, but can role model how parents can learn new information and comfortably share it with their children. Finally, since family is very important in many Hispanic communities, it was suggested that at least some of the characters be related.

The creative team then held multiple meetings to discuss those suggestions and to draft stories that would incorporate those preferences, while always keeping in mind the need to keep it realistic, educational, and short! The next blog post on this project will detail the development of the story outline and draft scripts, as well as the community feedback that finalized our stories.

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El Centro – Content Creation Part 2: Character Development

In our previous blog post, we describe the process of working with community groups to develop the main characters for our online, animated graphic novel. Using that feedback, team artist Mike Lurry created draft sketches of each character, and new focus groups were scheduled to discuss the way the characters look as well as the stories we had planned for them. Our next blog post will provide information on the evolution of those story arcs, and here we’ll summarize some findings from our community review of the characters’ appearances.

We have multiple goals when holding feedback sessions like this with community groups. In general, we want to know, “How do they look?!” But it’s also important for us to “sweat the details” particularly with communities who aren’t always appropriately or adequately represented in popular culture or mass media. We can’t incorporate every bit of feedback into our revisions, but are interested in trying to at least reach general levels of agreement around key details such as skin tones, hair textures, and body types.

During the groups, participants first listened to the story scripts and then were shown sketches of the characters one at a time and asked to freely provide feedback on anything that crossed their minds. Often, a surprising finding in groups like these is the degree to which participants will develop deep opinions about the character based on that single illustration. For example, when shown Mateo, aside from most respondents not liking his hair, they also assigned him personality traits that weren’t present in the story: “[People who look like that] think they are better or more important than anyone else.”; “75% of men who see themselves that way … seem to be so arrogant and think of themselves as very important. Or they value themselves more than women or anyone who isn’t where they are according to them.”; “[He looks like] someone who is disrespectful and doesn’t have respect for themselves.”

mateo2

It can also be challenging for participants to evaluate just the single image, as demonstrated by several comments about whether Angela, who may be in an abusive relationship, should look more scared and submissive. On the one hand, it’s important to make sure participants bear in mind that this is a single snapshot of the character and doesn’t reflect how she’ll always look in her scenes. But on the other hand, this example opened an interesting dialogue about she should look scared in the scenes, or did that perpetuate stereotypes that only scared, meek women can end up in abusive relationships.

Angela2

In other feedback, the participants mostly felt that the females looked too old and the mother was wearing too much makeup, and also that some of the characters hairstyles needed to be changed. The character of Gabriel was seen as being slightly too feminine, and several focus group participants referenced others in the room to note a better skin tone for the characters (described by one as, “delicious cinnamon”). However, it should be noted that a challenge is making sure the color printer used for the samples matches the correct tones of the image as much as possible, as it appears that the printed version had a slightly more olive/less tan tone than the original illustration.

An additional limitation to the feedback session is that the community groups first heard the drafts of scripted dialogue, and then were shown the sketches of the characters. It’s possible that in listening to the story, they created a visual image of how they imagined each character should look, which they then had to compare to our artist’s representation of the character. In future groups we will ensure that the character is shown first, in an effort to help mentally place the visual of the character within the story as it’s told, rather than vice versa.

Following the groups, the creative team met to discuss and prioritize the feedback given. These suggestions were then incorporated into updated drafts of the characters, changes that can be seen in the rough sketches in the side-by-side comparisons of each main character.

 

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El Centro – Content Creation Part 1: Creating the Characters

The objective of our ACIOP project is to create online, animated, Spanish-language vignettes to provide HIV education and links to NLM resources. Our goal is to create highly visual, engaging content in order to get our audience involved in stories they enjoy and can relate to. Over the first half of our project period, we held multiple Spanish-language focus groups with community members to understand how they currently obtain HIV information, and how our stories could help share new information they need. Focus groups were held at three different locations in NYC and on Long Island and had mixed demographics: some groups were all YMSM, some were all women, and some were a mix of ages and genders.

While our final products are fictional, we engage in an ongoing process of obtaining community input and feedback to ensure that the characters and scenarios are as realistic as possible while conveying our target educational messaging. In the first round of focus groups, we described our project as being similar a soap opera story, and gathered details on the sorts of main characters the community would like to see as well as what those characters should look like. Our initial focus group results included broad feedback such as emphasizing the importance of family in the Hispanic community by having some characters related to one another, as well as more specific suggestions such as having our male characters be neat and nicely dressed, with no baggy or low riding jeans.

Other community members suggested that we include a wide variety of character demographics because they felt that most HIV/AIDS educational material they’ve seen has been targeted at the LGBT community, and they wanted this project to show additional lifestyles and viewpoints. They also felt that a wide variety of characters would be useful in terms of reaching high-risk populations through their social and family circles. For example, focus group participants noted that an older character may no longer be sexually active or otherwise at-risk, but they may need information to help them talk to an at-risk family member or help that family member locate resources.

Based on this feedback, the content creation team developed the following primary cast of characters:

  • Mateo: Age 23, is questioning his sexuality and has had encounters with both men and women. Mateo
  • Gabriel: Age 26, openly out and seeking a long-term relationship but using hookup apps in the meantime. He is on PrEP but not regularly using protection against STIs. Gabriel
  • Angela: Age 22, Gabriel’s cousin, a community college student who is in a relationship with a brutish young man named Esteban who shows signs of being unfaithful to her.  angela
  • Maria Elena: In her 40’s, she is Gabriel’s mother and has heard rumors that her son is gay but is finally coming to terms with that truth and trying to learn how to help him stay safe.  MariaElena

Our artist then created initial draft sketches of these four characters, which we brought to focus groups for further feedback. The results of that focus group will be covered in our next blog post.

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The “Community Promise/Promesa Comunitaria” HIV/AIDS Awareness and Prevention Campaign

Comunidades Unidas has a long-standing commitment to provide accurate HIV/AIDS information and provide information on available online and community resources to the Latinx community living in the state of Utah. How is this work being accomplished? This work is being done by the Promotoras de Salud (Community Health Workers). Promotoras, also referred to as Community Health Workers (CHWs) are an essential key to Comunidades Unidas. Promotoras for CU are community leaders who educate, refer, empower and assist the community in all aspects of their daily life. Promotoras are a cultural bridge between community organizations, government agencies and Utah’s population who need access to different services, in a reliable and understandable way.

This past quarter 13 Promotoras de Salud received a training on HIV/AIDS and other Sexually Transmitted Diseases. They learned about the spread of HIV/AIDS and STDs, the treatment(s) available, the symptoms and how can someone be diagnosed. Promotoras were also trained on online resources provided by the National Library of Medicine. For the Latinx community we have decided to focus on the promotion and use of infoSIDA and MedlinePlus en Español.

As of now Promotoras de Salud have been able to reach out to 253 community members through formal workshop sessions that are conducted within the Mexican Consulate in Salt Lake City. They have also reached out to 510 community members during informal settings and one-on-one conversations with family members, friends, neighbors, or anyone they encounter throughout their daily lives.

Now that the winter snow is on its way of melting away our busy sunny days are approaching us fast. Which means more outreach opportunities for CU and the Promotoras de Salud. The refresher training will allow the Promotoras de Salud to be ready to hit the parks, summer events, community meetings, and more, ready to inform our Latino community about HIV/AIDS and the resources available to them both online and within their own community.

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